I Screwed Up Dinner and Then Some

Needless to say, November started terribly. Add that to the rest of the year and it’s a recipe for an emotional storm. If you’ve been with me a while, you know that my body does not respond well to heightened emotions. Depression, check. Fibro flare, check. Psychogenic Dystonia episodes (attacks, as I call them), check. These attacks are bound to happen; I’m not shocked when they do occur. They do however, still hold that element of surprise. Where will I be when it begins? What will I be doing? How long will it last? Which body parts will be affected? Wednesday gifted me with not one, but two episodes. Luckily, I felt them coming and got myself to a safe place. They also didn’t last very long, which I was thankful for. When my mom learned of Wednesday’s episodes, she said I had reached my limit for the week and wasn’t allowed any more. Well, I must be an overachiever because on Thursday I had another one. If this is your first time reading my blog, I have a strange sense of humor and sarcasm; just roll with it.

Cue dinnertime. My husband and I were making tacos and chimichangas. Bellies grumbling, this was going to be a delicious and satisfying meal. Everything was ready, and the oil in the pan was hot, ready to magically turn burritos into chimichangas. The picky eaters (kiddos) had already eaten. My husband had warmed up his tortilla and layered his ingredients when I heard him ask, “aren’t you going to warm your tortilla?”. I wanted to answer, but I couldn’t. I responded in my head, but could not get the words out. Our backs were to each other as I was at the counter opposite of the stove. I was midway through closing the bag of tortillas when I just froze. At that particular moment, my body said I’m done and I guess I didn’t get a say in the matter. I really feel like I should be a part of these major decisions. Once my husband had asked a couple times what was wrong and got no response, he did his best to help me. I am used to the episodes that cause my muscles to tighten and contort me however they see fit, but this one was different. I just stopped, stared off, couldn’t speak, couldn’t move. My arms may have well been cooked spaghetti noodles. I couldn’t lift them, couldn’t grab my plate, couldn’t hug my daughter back as she offered comfort. It was frustrating to say the least. Slowly I regained my words and I did manage with my husband’s help, to get my feet moving. I shuffled back and forth in the kitchen in hopes that maybe some muscle memory would kick in. Nothing. Back to the counter. I asked to have my arms lifted and rest on the counter so I could concentrate on making my hands and arms do something, anything. I attempted to lift my hand. I felt muscles tighten, but they were the wrong ones. What I got instead was a tight upper arm and an elbow that felt glued to the counter and still nothing from my hand. The more my husband tried to help and the more I tried to concentrate on getting body parts to cooperate, the more my upper body tightened. I told my husband to finish cooking his food and eat without me. Being the sweetheart he is, he insisted on waiting for me. I felt bad that his food was getting soggy the longer it sat. Everything else on the stove was cooling down. The oil in the pan was burning and needed to be turned off. Back to shuffling around the kitchen. Then, the familiar muscle tightening I’m used to. Feet together, legs straight, jaw pulling to one side, my husband had to pick me up and carry me to the couch. The whole attack lasted about an hour. I had ruined a great dinner, later evident by the not so fresh taste of the food. Other than the grumble in my belly, all I could seem to focus on during that time, were the negative thoughts swishing around in my mind. I’m a burden. I mess up good things. It’s not fair that my husband has to deal with this. What if I’m the cause of his stress? He probably wishes he had never met me. It’s only a matter of time before he leaves. Does he feel obligated to stay? He resents me. The kids shouldn’t have to take care of me or watch this. Are they going to have the same issues? Is this going to be how they remember me someday? I suppose I have anxiety and depression to thank for all the intrusive thoughts. They are the salt poured into an open wound. As I type this, I know that most of those thoughts are not things I need worry about; at least I hope that is the case. Yet, they still linger at the back of my mind, just waiting for depression and anxiety to open the gates and allow them to overwhelm me.

I know I have no right to complain, but some moments really make me question why I can’t just be normal. I know I need to trust God’s timing and purpose for me. I hope that I am not disappointing Him each time my head fills with so much negativity.

I hope all of you are doing well. Sending hugs.

With love,

J♡

Incomplete Thoughts

Good morning/afternoon/evening! While I’m still struggling to put together complete thoughts, I figured I would share some of the things bouncing around inside my noggin.

  • Some days I feel like I’ve lost my marbles. I found some among my craft things, but I’m not sure they are mine.
  • Those little captcha things you have to do when downloading something…they make you check the “I’m not a robot” box. Every time I click it, it feels like a lie. With all the screws and battery and wires from my surgeries, I think I am part bot.
  • I feel guilty that I am unable to work and contribute financially. The guilt doubles on days that I struggle to complete housework.
  • When someone cracks a joke about me not having a job, it’s not funny. It makes me feel useless.
  • I need to start making Christmas gifts, but the procrastinator in me says I’ll probably be finishing them two days before Christmas.
  • When someone asks how I am doing and I reply with, “good, thanks”, it doesn’t mean my chronic health issues have gone away. It means that at that moment, I am tolerating/hiding it better.
  • I miss driving.
  • As I was looking through the “stats” page and noticing the different countries views are coming from, it filled my heart with joy. When I started blogging, I never imagined more than a handful of people wanting to read my words. From the bottom of my heart, thank you.
  • I’m contemplating writing a letter to the man who stole a part of my childhood.
  • I do not like the way my voice sounds on the phone. I thought I was 33, not 12.
  • I had to think about how old I am. Yes, 33 is correct.
  • I’m over this covid crap, the elections, and city life. I want to move to the middle of nowhere and be neighbors with the trees and wildlife. Maybe someday.

There ya have it, you’ve rummaged through some of the junk drawer that is my brain. Be well, my friends.

With love,

J♡

Skeletons


I wonder how many friends I’d have now
If I exposed my skeletons, left nothing out
Would I be judged harshly for the mistakes I’ve made
Even though my debt has already been paid
Would they criticize my choices based on their views
Without ever having walked a step in my shoes
Would they think less of me
For the things they do not currently see
How they would react I suppose I’ll never know
As long as I keep my skeletons where they do not show


Thanks for reading.
I can only hope that those who know me, look at the person I am today. I’ve made plenty of decisions that I am not proud of, but I have learned and grown from each one. Be well my friends. God bless.

With love,
J♡

I Cannot Spill the Beans

Oh hello there, lovelies!  How are you?  I would love to tell you that I have some amazing excuse for my absence, but that would be a lie.  More than anything, the guilt I’ve felt about not posting had me contemplating quitting my blog altogether or starting over. I did what I seem to do best, avoid the issue and then apologize (again) for my absence.  I realize that at some point you may tire of all my “I’m sorry” posts.  So if you’re still here to share in my journey, from the bottom of my heart, thank you! I will try to do better.
There’s been many things taking an emotional toll on me lately and I’m trying so hard to stay upbeat, but you guys, I’m struggling. Because some of these things involve other people, I need to be respectful of their privacy. I don’t know if you all know this, but I’m kind of a self-proclaimed expert bottler; and so I will use my expertise to bottle up these emotions as well.  As for the issues that are not so personal…I’m sure you all have noticed how much hate and division there seems to be everywhere you look.  People are so divided about politics, the pandemic, equality and so on.  People are arguing and name calling constantly.  I try to just stay in my own little bubble and not let other people’s actions affect me, but it’s heartbreaking to see/hear.  When did we become so focused on being right that we forgot to care about and love one another?  When did we lose our ability to have civilized conversations and learn from each other?  I know we can all do better.  For now, I will concentrate on seeing the good in people and do what I can to show kindness to those I interact with.  Taking a break from social media may be a good idea as well.
On to the health stuff.  Fibromyalgia continues to be a pain in my – everything.  I’m feeling as though I must be in a flare because some days, it feels like I’ve been hit by an 18-wheeler.  Side note – that’s never happened – maybe not a fair comparison.  The pain clinic thought it would be a good idea to go back on pain killers for a bit.  Good ol’ insurance has me waiting until they receive prior authorization.  I have my muscle relaxers, but they don’t do much for me.  Unfortunately, I’m still having my attacks (Psychogenic Dystonia). Although they are less frequent, they still hit pretty hard each time.  Several of these episodes left me so sore that I was sure I had pulled a muscle or two.  Let’s talk about laughing until (or while) you cry.  Pseudo Bulbar Affect…uncontrollable laughing and or crying that is not appropriate for the circumstance.  I hate these episodes more than the dystonia.  I hyperventilate, sweat like crazy, and then sob between fits of laughter.  I feel like I’m not in control and it scares me.  I’m so thankful that these episodes don’t occur very often.  The neurologist said there is a medicine he could give me, but I really don’t want any more meds.  I think I’ll hold off as long as possible.  I really don’t leave the house much, so I’m not too concerned about the embarrassment these cause.  My kiddos understand them, but it does scare them a little.  They try to leave the room when possible to offer me some privacy and allow me to not feel like such a spectacle.  I’m sure there is more I wanted to share with you, but the thought train seems to be leaving the the station without me.
Anyway, I really hope you all are doing well and staying healthy and happy. God bless you and yours.

With love,
J♡

This Past Week and a Sloth’s Adventure

Hello, everyone. I’m sorry it’s been a while. While we were out of town, I tried to stay off my phone so I could focus more on family time. I really don’t have an excuse for not posting/reading since being back (I got home late Thursday night), other than guilt. I have this horrible habit of letting something slide, whether it be calling someone, missing a medication dose, posting on the blog, and so on. The first oops, I feel bad but think, I’ll do it tomorrow for sure. The second day I forget, I get mad at myself. The third day, I feel guilty and instead of facing things head on, I let the guilt consume me and more or less try to run away from it. Does this make any sense? It’s a habit I’m trying hard to break. I will try to do much better from here on out.

The few days we got to spend out of town were wonderful, even if I did come home with lobsters for legs. A short amount of time in beautiful cool weather while the sun is shining, can do a lot of damage. Wear your sunscreen, kids. Since this was a last minute trip, I forgot to grab my antidepressant. The first day was okay, but the second day I started to feel it. Thankfully, I called the pharmacy and was able to get a few pills. Because it wasn’t time for a refill, insurance wouldn’t cover it and we had to pay for them. Oh well. One of the days there, the husband and I hung back while the grandparents surprised the kids with a trip to the amusement park. They had a blast! We could have joined, but I really didn’t think my body would be able to handle it. When they returned, my son surprised me with a little sloth for surgery day. He bought it with his own money. It was such a sweet and thoughtful thing to do and I absolutely love it! He named the sloth Mr. Cuddles, and he made sure I had him with me as we left for the airport. The kids would not be back for a couple more days. The kids were a little bummed that were leaving, so I decided Mr. Cuddles would have an adventure. I sent these to my father in-law to show the kids:

Waiting our turn to board

Flight safety is important

Pushing back

Hard to see, but he stole my coffee. Apparently it calms his nerves.

We remembered to get the boogie boards

Home at last. Time for a snack.

The kids thought the pictures were cute and I was told it put a big smile on my son’s face. That’s all I wanted.

The day after my husband and I returned, we were headed to my Mom’s to pick up the dogs. About a mile from her house, we hear a terrible sound coming from under the hood of my car. Next thing we know, the engine cuts out and we were luckily able to coast into a parking lot. The car has been towed home and now it must sit until we can replace the engine.

Yesterday, anxiety and depression were being nasty little “bleeeeeep”. I had two big meltdowns. I tried so hard to fight it off by staying busy, but it was no use. I don’t know if it’s because I messed up my medication or too much excitement in one week. Today has been better, I just feel wiped out. On that note, I will wrap up this post. I hope you have all had a great weekend.

With love,

J♡

My Life, This Thursday

I feel accomplished today, but oh so drained and my body absolutely hates me. Today was one of those days where I pushed to do more than I can handle. I tidied up the house, vacuumed, mopped, took out the trash, showered, did some laundry, and most importantly kept the kids alive. I know that for many people, those tasks are no big deal, completing them multiple times a week and then some, but that’s not my world anymore. I feel like I have just worked a forty hour week. I don’t say this for sympathy or a pat on the back; I say it as a reminder to myself that I am doing the best I can and that is good enough. I often find myself feeling guilty that I don’t accomplish more daily, or compare myself to other people who tackle so much more in life. I’m trying to break this habit since it only hurts my mental and physical well being.

I found out today, that my primary insurance has approved the spinal cord stimulation trial, and now we’re just waiting for approval from our secondary insurance. The woman who handles all of this at the pain clinic, said she would get an update and get back to me by Tuesday, as she will be out of the office until then. I said to her, “sorry, I don’t mean to be a pain in the butt, I’m just anxious for pain relief”. She responded with “no, you’re fine, I completely understand”. What a sweetheart! The healthcare world needs more people like her.

My kids are amazing. I feel guilty so often that I am not the mother I would like to be, for them. They are so understanding and helpful when they know I am hurting really bad or am exhausted. They don’t mind when I need a nap and often times insist that I take one. I don’t even think they realize how much this means to me, though I try to tell them often.

I got bit by so many mosquitos today, that I am convinced there must have been on sign on me reading, All You Can Eat Buffet. When Noah was told to take two of each living creature on the arc, are we sure that mosquitoes were on the list? I need more Citronella candles asap.


Another pain pill in my body for the night and I’m ready to just do nothing.

Wishing you all a Happy whatever day it is, depending on where you are in the world. Take care, friends.

Images from http://Pixabay.com

With love,

J♡

I Am

I Am

By J♡

I am

The worn piece of furniture

Taking up space on your floor

The tattered blanket

That can’t warm you anymore

The burned down candle

That will no longer light

The glare from the sun

Disrupting your sight

The shattered glass

Through which you can no longer see

I am all of these things

But this is not me


Thank you for reading.

P.s. sorry, I missed my post yesterday.

With love,

J♡