Medical Issues

Hello, everyone. How are you?? Can you believe it’s October already? I think it’s been close to a month since my last post. I will try to fill you in on what’s been going on without making this too lengthy.

First, the good news; my spinal cord stimulator is working great to alleviate the low back and leg pain (most of the time). I have to admit that the second to third week of recovery was really tough. My body went into a huge fibro flare to the point where I actually feared myself for a moment. There were a couple of nights where I couldn’t sleep and hurt so bad, that I thought I might go temporarily insane and try to claw the device out of my body. I know that sounds gross, but in those moments, I wanted to crawl out of my own skin. My back hurt and I could feel the wires just under my skin…it made my stomach feel sick. All that is better now, thankfully. Just when things start to be looking up though, life likes to throw a surprise party.

Do you remember the “psychogenic movement attacks” that I’ve mentioned before, and how I had one of these at my post-op appointment? It turns out, they are actually seizures and I’ve been having them every day, multiple times a day. The first time it was given this label was at a doctor’s appointment to check thyroid levels and such. I had an episode during my appointment and thankfully, the doctor was able to identify what it was. Not being his particular field though, he could not say what type it was or why it was happening. He was going to reach out to a colleague for help.

The next day, we were running late to pick our son up from school. I had a seizure just as we were trying to leave the house. We make it not quite a mile from the house when the police lights and sirens are in our rear view. My husband was pulled over for a broken taillight. As the officers were running our information from their car, I went into another seizure. My husband jumped out of the car to notify them and Fire/Medical was called. I do not lose consciousness during these, but become less aware of what’s happening outside my little bubble. The officers notified our son’s school while I was being checked out. I declined being taken by ambulance to the Emergency Room, and would have my husband take me there right after we got our son. The ER placed an IV, started fluids, and drew blood. I was given an anti-seizure medicine and sent for a CT scan of my head. Right after the scan I had another episode. This time they gave me a more powerful medicine. My CT came back normal, so they sent me home loopy and half asleep, and told me to follow up with a neurologist.

The next morning, I had a follow-up at the surgeon’s office. Guess what? Another seizure. Another Fire/Medical call. I declined going to the hospital at all this time. I wasn’t going to have them inject another knock me on my butt medication and send me home. A waste of time in my opinion. I finished my appointment and left with another neurologist referral.

A couple days later, I got in to see the physician assistant at the pain clinic. I had a seizure while there too. She wanted to call 911 but I begged her not to. Out of respect for our wishes and because she’s seen me for four years, she agreed but was not comfortable with it. At this point, I was having four to eight episodes a day. She prescribed me a strong muscle relaxer and sent in a referral to the neurologist.

The next week was filled with searches to find a neurologist that accepted new patients and our insurances. The seizures were leaving me so tired and I had what I thought was a cold, so I was spending a lot of time in bed. My hubby told me I should try to get up more so I didn’t catch pneumonia. Well…

I went from low fevers, to shivering cold, not sweating and spiking a fever of 105 before finally going to the hospital. This time was a longer visit. I was admitted that Thursday night an stayed until Saturday evening, to treat sepsis and pneumonia.

Selfie because hospital gowns are glamorous

And of course Mr. Cuddles was there with all his shenanigans…

He has a coffee addiction
“Not that button!”

I’m feeling much better from that now, just still lacking energy.

I had a follow-up with my family doctor for the hospital visit and also to get another referral to a neurologist (as required by insurance). You guessed it, another episode. This time, he was able to say that he thinks these are temporal lobe seizures. But of course, the neurologist will have to make an official diagnosis. We actually left that appointment feeling relieved. We finally felt like we knew what we were dealing with.

As long as I take my muscle relaxer every eight hours, the seizures are less frequent and less intense most days. After a lot of hoops we had to jump through and some drama, I finally have an appointment scheduled with a neurologist for the 23rd of this month (thanks to my momma bear). In the meantime, I can’t drive and kind of need a babysitter. I also found this information the other day; and I’m not too thrilled about it, but I understand.

I will try to keep you posted as much as I can. Take care, my friends and God bless you.

With love,

J♡

Attention: Prayer Warriors

My dear friends, I know it has been a while since my last post. I have been struggling, and I plan to talk about it in a later post, but tonight I have a favor to ask. If you find it in your heart and have a moment to spare, would you please say a little prayer for me?

Thank you. God bless you and your loved ones.

With love,

J♡

Yes, I Do This Sort of Thing Often 🎶

Pain has stolen a lot from me, but my odd sense of humor always seems to go unscathed. As many of you know, this last surgery was the fourth spine surgery in just over two years. I made a little song about all my robotic pieces:

You’ll need to sing this in the tune of “1 little, 2 little, 3 little…”

1 big, 2 big surgical screws

An interbody cage, and 3 more screws

A generator and some wire leads

These are the parts in my body


I hope you’ve enjoyed my little jingle. Was I on pain pills when I made this up? I’ll never tell. Okay, yeah I probably was.

With love,

J♡

This Past Week and a Sloth’s Adventure

Hello, everyone. I’m sorry it’s been a while. While we were out of town, I tried to stay off my phone so I could focus more on family time. I really don’t have an excuse for not posting/reading since being back (I got home late Thursday night), other than guilt. I have this horrible habit of letting something slide, whether it be calling someone, missing a medication dose, posting on the blog, and so on. The first oops, I feel bad but think, I’ll do it tomorrow for sure. The second day I forget, I get mad at myself. The third day, I feel guilty and instead of facing things head on, I let the guilt consume me and more or less try to run away from it. Does this make any sense? It’s a habit I’m trying hard to break. I will try to do much better from here on out.

The few days we got to spend out of town were wonderful, even if I did come home with lobsters for legs. A short amount of time in beautiful cool weather while the sun is shining, can do a lot of damage. Wear your sunscreen, kids. Since this was a last minute trip, I forgot to grab my antidepressant. The first day was okay, but the second day I started to feel it. Thankfully, I called the pharmacy and was able to get a few pills. Because it wasn’t time for a refill, insurance wouldn’t cover it and we had to pay for them. Oh well. One of the days there, the husband and I hung back while the grandparents surprised the kids with a trip to the amusement park. They had a blast! We could have joined, but I really didn’t think my body would be able to handle it. When they returned, my son surprised me with a little sloth for surgery day. He bought it with his own money. It was such a sweet and thoughtful thing to do and I absolutely love it! He named the sloth Mr. Cuddles, and he made sure I had him with me as we left for the airport. The kids would not be back for a couple more days. The kids were a little bummed that were leaving, so I decided Mr. Cuddles would have an adventure. I sent these to my father in-law to show the kids:

Waiting our turn to board
Flight safety is important
Pushing back
Hard to see, but he stole my coffee. Apparently it calms his nerves.
We remembered to get the boogie boards
Home at last. Time for a snack.

The kids thought the pictures were cute and I was told it put a big smile on my son’s face. That’s all I wanted.

The day after my husband and I returned, we were headed to my Mom’s to pick up the dogs. About a mile from her house, we hear a terrible sound coming from under the hood of my car. Next thing we know, the engine cuts out and we were luckily able to coast into a parking lot. The car has been towed home and now it must sit until we can replace the engine.

Yesterday, anxiety and depression were being nasty little “bleeeeeep”. I had two big meltdowns. I tried so hard to fight it off by staying busy, but it was no use. I don’t know if it’s because I messed up my medication or too much excitement in one week. Today has been better, I just feel wiped out. On that note, I will wrap up this post. I hope you have all had a great weekend.

With love,

J♡

Good News and Bad News

Hi friends. I have some good news and some bad news. Which do you want first? Ok, we’ll go with bad news.

I woke up to a phone call today. I looked at the caller ID. It was from my pain clinic where my procedure is scheduled. I assumed it would be the the typical recording that always mispronounces words, reminding me of my appointment. Nope, it was a real person letting me know the doctor recommended I reschedule my appointment until next week. She said it was up to me, but if I kept my original appointment, they would not be able to give me the stronger sedation. Mind you, I was only partially awake and you know how anxious I’ve been for this, so I agreed to go with the lesser sedation and keep my appointment. After waking up my husband to get his opinion, and chewing on it for a minute, I decided to call and change the procedure day. When I called the office back, I found out that the reason for the change was because the woman who administers the sedative had a family emergency and had to call out. I have to admit that I was a little more than bummed out. Pain relief was so close, but maybe this was a sign. So instead of sulking, I will look at the positives and pray for the woman and her family. I only have to wait one more week. The new date is set for late morning on July 2nd.

Now the good news…☺

Because the plans changed, my husband and I decided to meet up with the kids and my in-laws on vacation. The best part? The kids had no idea we were coming, and their excitement when they saw us was priceless! It made my heart feel all mushy. Now we can all soak up the cool air and sand beneath our toes as a family. As a bonus, this will definitely help the time go by faster until next Tuesday.

Thank you all, for your well-wishes and support up to this point. ❤

With love,

J♡

I’ve Been Slacking – Update Time

Oops! I didn’t realize I let so many days pass without posting. So let’s see, what has been going on around here?

Well, there’s this…

Soooo close to THE day! I’m down to my last pain killer. Actually, a quarter of a pain killer, which in a way is a good thing. No pain pill means that pain will really build up, and while I’m not thrilled about that, it will allow me to really see just how well this scs device works. Yesterday was a bad pain day, today was worse, and I’ll have to wait and see what tomorrow brings. I can only hope and pray that it plays nice. I am contemplating doing some YouTube videos during my trial to give updates. Maybe it would help others who are considering or about to go through this procedure. I’m not one for public speaking though and that is close enough to it. Plus, I’ve never liked the sound of my own voice on video or phone, ha. I’ll let you know what I decide.

The kids have been gone since Friday night. They are now on vacation with their grandparents, soaking up beautiful weather and ocean waves. Here’s the purse (finished) that I made for my daughter.

She absolutely loved it! Then again, that girl would be thrilled to receive a crayon drawn heart on a piece of paper.

I did also make that backpack I talked about, for my son. He liked it, but his response of cool, thanks, is more his personality.

A pocket on the inside for smaller things:

Maybe he’ll use it, maybe not, but at least he has it just in case. Either way, I had fun with these projects.

It’s been a little strange not having the kids home, but kind of nice. Do I miss them? Heck yeah! Am I also enjoying the calm in the house? Oh yeah! Any parent that says they can’t stand to be away from their kid, is either a brand new parent or from a different planet. I’m teasing. It is nice though, to have some downtime and take care of me for a bit. Speaking of which, my sweet husband told me yesterday that I should go and get my hair cut if I wanted and buy a box of color if I like. I did, and it felt wonderful! I’m working on growing my hair out, but it was close to mullet status…no thanks! A quick cut had me feeling much better already. I picked out a deep red color and dyed it at home. Add a little makeup and I felt genuinely happy and girly. When you’re in pain and such, a lot of days are filled with messy hair and pajamas. So even though I didn’t have plans, just getting a fresh look made me feel more human. Does that make sense?

I suppose that is all for now. Hugs to whoever may need one. Wishing you all a great day/night.

With love,

J♡