What it is Like

Hello, my friends! I hope you are all doing well. I have missed you. We are getting ready to sell our home, so I have been busy weeding through the clutter we have accumulated and packing up the important things. This is going to be a huge change for us as we are moving out of state. So long, Arizona! I will do my best to document the journey along the way.

Today though, I wanted to talk (again) about Fibromyalgia and other chronic “invisible” illnesses. So often, those of us who “don’t look sick” are judged based only on what others see and their lack of knowledge and understanding. I recently had an argument with someone close to me about this matter. Sadly, I know they are not the only one who feels this way. They perceive me as someone who is lazy because I cannot work, but they see that I have done other projects around my home. What they don’t see: medication to get through the pain, tears, restless nights, naps, fatigue, and three days of recovery. Try as I might to not let someone’s opinion of me get under my skin, it does. I try to keep in mind, that it is hard to comprehend what it is truly like dealing with chronic illness, until you have been through it yourself. Again, I wouldn’t wish that on anyone. I thought I would share some images that depict what my days are like with Fibromyalgia.

It is usually a day that you have the most on your “to do” list. Very inconvenient.
Fibro and Arizona do not get along well. At all.
The batteries are never at full charge.
More like 13, but who’s counting?

Be well, my friends. God bless you.

With love,

J💜

Fibromyalgia is a Pain in the AskWhatDoesn’t Hurt

Pain free days are long gone. I haven’t had one of those in ten years. To be honest, I’ve forgotten what that feels like. The only thing that exists now is a good pain day or a bad pain day. The thing with fibro is that it’s like a rollercoaster; you can feel mild pain one minute and BAM, the next minute you’re struggling to do anything, the pain is so intense. I feel like this is why anyone who doesn’t have fibromyalgia, has a hard time understanding it (I’ll be doing another post on this issue later).

On a good day, maybe only the arms and legs hurt, or the all over pain is mild enough that I can complete all my tasks without being in agony. Most days are not like this. In the event that I do get a day like this, I tend to over-do it, catching up on everything fibro wouldn’t allow me to do the day(s) before. This in turn means that I will spend the next two to three days paying for it. Today is a bad pain day. Everything hurts. I’ve got a headache, my neck is sore, my arms, hands and legs feel as though they will surely break if I move wrong, my ribs feel bruised to the touch, my clothes are irritating my skin. I’m not looking forward to showering because I know that the water hitting my skin and shaving are going to hurt. This is only one of the gifts fibro has to offer. There’s also fibro fog and fatigue, which I will address in another post. Today is the type of day where I want to crawl into bed and stay there for hours, but I can’t. So I will do my best to push through the pain, try to smile when in company, and hope that tomorrow will be better.

Gentle hugs to my fellow fibro warriors. Remember, we’ve made it through our bad days so far and we’ll make it through this one too.

With love, J♡