Don’t assume that because I’m smiling, surely I must be happy. Sometimes it takes all that I have to wear a smile, but if you look into my eyes, you will see that they disagree.
Don’t assume that the things I did yesterday, I will be capable of doing today. My pain is unpredictable and always present. It can change from one minute to the next. It is likely that yesterday’s activities have drained me of my energy and my pain tolerance will be lower today. It may take me three days to get back to where I was yesterday.
Don’t insist that the treatments your aunt, friend, or coworker used will help me just because it helped them. We may have the same illnesses, but how they affect an individual varies greatly. If you think I haven’t tried remedy a, b and c, you are mistaken.
Don’t tell me the things I should do to “cure” my fibromyalgia. I’m not giving up, but a cure doesn’t exist at the moment (do your research). I accept that fibro is now a part of my life and do the best I know how to keep moving forward.
Don’t assume that I am exaggerating how I feel to get out of plans or responsibilities. The amount of guilt I feel each and every day, is more than you can imagine. I feel like a burden. I’m no longer invited to social events. I feel like I let people down constantly.
Don’t mock or continuously question my illnesses just because you don’t understand them. If I try to explain them to you or give you resources to read, listen to me and read the information. If that still doesn’t satisfy you, there are plenty other resources online.
Don’t tell me I should just be more positive. I’m trying my absolute hardest; I promise.
Don’t tell me that others have it far worse than I do. I’m well aware of this and trust me, I feel guilty when I complain. This doesn’t mean however, that my struggles are not valid.
Rant over. Thank you for allowing me to vent. Sending big hugs to whoever may need one.